All other information collected from you may be used and shared with third parties on an anonymous or aggregated basis only. Your personally identifiable information is stored in our databases. You can access, modify, or permanently delete your records at any time. With your consent we may contact you from time to time about clinical trials that may suit your profile, to introduce new products, to share educational materials, to solicit patient stories after trials are completed, and for other reasons supporting our mission of helping patients find and access treatment options in development.
BioHymns may contact you via equivalently secure registered third-party platforms, email, SMS or social media. BioHymns does not exchange personally identifiable information through/via social media – nor do we sell or share your personally identifiable information with social media channels.
You can opt out of this service at any time and can choose to not use the Site.
Children Under the Age of 13
Our website is not intended for children under 13 years of age. No one under age 13 may provide any personal information to or on the Site. We do not knowingly collect personal information from children under 13. If you are under 13, do not use or provide any information on this Site or on or through any of its features, and do not provide us with any information about yourself, including your name, address, telephone number, e-mail address, or any screen name or user name you may use. If we learn we have collected or received personal information from a child under 13, we will delete that information. If you believe we might have any information from or about a child under 13, please contact us at firstname.lastname@example.org
The purpose of this Privacy Statement is to explain what BioHymns does with personally identifiable information that you provide to us. We want you to know how your personally identifiable information will be protected, as well as under what circumstances we may share it, with whom, and for what purposes.
Reason for Collection of Your Information
Many of BioHymns’s services, such as browsing through our clinical trial database, do not require any form of registration or identification. You can freely visit many of our web pages without telling us who you are. However, some of our other services, such as inquiring for specific clinical trials, do require that you provide your personal details, including but not limited to your medical history, demographics, and other information. This allows us to process and/or send you information that you request about specific clinical trials or potential trials which you may be suitable for. We may also use your email address to contact you and introduce new products or to otherwise share additional materials supporting our mission of helping patients find and access treatment options in development.
We may also collect and use your personally identifiable information to further develop our products and services, to meet legal requirements, or to protect the rights and safety of our customers and third parties, as well as our own.
Personal Information Collected From You
The information that we ask you to provide may include your first and last name, age, gender, racial or ethnic origin, mailing address, telephone number, information relating to your medical conditions and history, biometrics and genetic profile.
BioHymns limits the collection and processing of personal and medical information to what is necessary to fulfil the purposes for which it is to be used.
Consolidation of Information Collected From You
Many of our customers register for more than one trial or service, through the Site, by calling BioHymns, or through a third party, such as their healthcare provider or a BioHymns partner. When you register with us more than once, we may combine your personally identifiable information with anonymous computer information gathered (see below) and store it collectively. This helps us keep track of all of your preferences in one organized place, so that we can provide information to you based on a more informed review of your requests and medical conditions of interest.
BioHymns takes all reasonable steps to ensure that personal data collected is reliable for its intended use, accurate, complete, and current.
Collection of Anonymous Computer Information
When you visit the Site or access our search tool through our partners, we do not collect any personally identifiable information about you without your permission. However, we do collect anonymous information about you if your computer is set to allow that type of collection. This includes geo-location, IP address and device ID or fingerprint. You can turn off the ability to collect some of this information from your computer or device settings.
Consent to Provide Your Information to BioHymns
We request your consent to collect your personally identifiable information when you seek to register for a BioHymns program or service. In doing so, we also explain, for that program or service, what you are registering to receive and how we plan to use your personal information. We also offer you the option of discontinuing your consent (“opting out” or “unsubscribing”) if you later decide that you no longer want to participate in that program or receive additional information from us. If we wish to use this information for purposes incompatible from those for which the data was initially collected, we will offer an effective way to opt out of the secondary use. Please note that if we share your personal information with a sponsor or manager of a clinical trial (a “Sponsor”) that Sponsor may continue to have access to your personal information even if you choose to no longer receive additional information from us.
Sharing Your Information With Third Parties
BioHymns requires third parties to whom it discloses personal data to protect personal information using substantially similar standards to those required by BioHymns. We also require that they do not use your personal information for any separate use that is not specifically for the execution of the clinical trial or as otherwise authorized by BioHymns. There may also be instances where BioHymns may be required to share your information with third parties who have not been retained by us (directly or indirectly), as ordered or directed by courts of law or other governmental agencies.
Also, BioHymns is obligated to report any Adverse Events identified through the course of the Program to the Sponsor’s Drug Safety for regulatory compliance. In these cases, you are also accepting that the Sponsor may contact your doctor for further information about the adverse event. All information received by Sponsor’s Drug Safety Department is treated in confidence and in accordance with the Privacy laws, and the patient information is de-identified. Adverse Event reports may be forwarded to the relevant health authorities.
Security of Your Information
We use appropriate technical, administrative, and physical safeguards to protect data that pertains to you from loss, misuse, or alteration. In addition, we take steps to ensure that our safeguards take into account new known threats. Of course, no organization can guarantee the absolute security of personal information. You should keep in mind that Internet transmissions, particularly email transmissions, are never 100% secure or error-free. Accordingly, we also caution you to guard your own computer and password against unauthorized access by others.
Any detected breach of data security (accidental or unlawful access, disclosure or misuse of personally identifiable information) shall be reported without undue delay.
Transfer of Your Information
At times BioHymns may be required to transfer and/or store personal information in countries other than the country where the information was provided. In particular, personal information of EU users may be stored in servers outside of the EU. In these cases, we maintain compliance with applicable privacy laws and legal frameworks. We protect personal information entrusted to us no matter what country it is stored in or transferred to and have appropriate procedures in place to help ensure the security of your personal information.
Retention of information
BioHymns retains your personally identifiable information for as long as it is necessary to provide services to you, or, until you ask us to suspend or permanently remove it.
Our privacy practices are periodically reviewed by our auditors to verify compliance with this Privacy Statement.
Updating and Accessing Your Information
Updated BioHymns Privacy Policies
This Privacy Statement becomes effective on July 15, 2019. BioHymns may update this Statement from time to time. We encourage you to review our Privacy Statement periodically.
Your European Union Privacy Rights
BioHymns may require you to provide additional information necessary to confirm your identity before we comply with any request made by you.
How to Contact Us
Last Updated on 16 st July, 2019